My baby can eat while sleeping, what’s your baby’s superpower? Tube feeding comes with many challenges. We have to have fun with it wherever there is an opportunity! Feeding your baby with a tube is likely not how you imagined your baby’s feeding journey. Me either. Due to medical challenges,…
Five months into our tube feeding journey, we switched to continuous, which brought some much-needed relief overnight as we were running on empty. Continuous feeds are just as you might imagine, feeding continuously – nonstop. My daughter was in interstage awaiting her second open heart surgery. We were struggling with…
What would you say if I said a feeding pump hanger is one of the most useful baby feeding accessories? That is if you have a tubie baby. Honestly, I wouldn’t have survived this journey without it. For her first 8 months, my daughter had to primarily feed through an…
To set the scene for you: my daughter’s second open-heart surgery was canceled, she was interstage in heart failure, losing weight and we needed to buy more time. After conferencing with several doctors, we decided to try an NJ tube. For the previous 6 months, we fed her through an…
Feeding Tube Awareness is low. “What’s that thing in her nose?” is something I heard countless times during my daughter’s first medically complex year. I’m passionate about raising awareness about feeding tubes. What they are, why they matter, and how to support those who need them. What do you know…