“Well she’s actually safer inside.” They would freeze in discomfort clearly unsure what to say next. “She needs open heart surgery around 4-6 months old.” I would explain to another person. Next, I would erupt in a nervous giggle not wanting to make them uncomfortable, also unsure what to say…
Taking care of a baby with critical CHD is a team effort. A team effort at home. And a collaborative team effort of providers in the medical space. In this post, come along with me to meet some of your CHD child’s medical team. I’ll take you through a list…
Your friend, sibling, or neighbor is starting to prep for their baby’s open heart surgery. You want to help but don’t know how. You don’t want to bother them when they’re already dealing with so much. While I haven’t stood in these shoes exactly. I have been on the other…
As the parent of a heart warrior, you quickly learn what to expect at a pediatric cardiology appointment. It becomes routine. In the beginning, however, everything is new. If your child is newly diagnosed with CHD or even heading to the pediatric cardiologist to confirm or rule out a Congenital…
After the shock wears off, and you gain acceptance of your child’s CHD diagnosis, you might want to learn anything and everything you can about congenital heart disease and defects. Check out these CHD books for your heart warrior and family to help everyone gain a better understanding of Congenital…