As the parent of a heart warrior, you quickly learn what to expect at a pediatric cardiology appointment. It becomes routine. In the beginning, however, everything is new. If your child is newly diagnosed with CHD or even heading to the pediatric cardiologist to confirm or rule out a Congenital…
Heart mama life is not for the faint of heart. Pun intended. If you’re a heart mom, you’ve likely heard, “How do you do it?” And “I can’t even imagine.” Or maybe “I couldn’t do what you’re doing.” But you can, and they could, and so could she. Because when…
Feeding Tube Awareness is low. “What’s that thing in her nose?” is something I heard countless times during my daughter’s first medically complex year. I’m passionate about raising awareness about feeding tubes. What they are, why they matter, and how to support those who need them. What do you know…
As a seasoned mom, pregnant with my third, I never expected to have a tubie baby. Honestly, I was completely unaware of tube feeding. As modern moms, we’re bombarded with feeding war messaging – formula versus breastmilk, on-demand versus scheduled, nursing versus bottle feeding. Yet there’s an entirely separate feeding…
This Heart Month, join our efforts to raise Congenital Heart Defect (CHD) Awareness and shop CHD small businesses. Once you become a heart mom or heart dad, heart aunt, or heart grandma, it feels natural to want to tell everyone about your family’s warrior and spread CHD Awareness. An easy…
If you’re a heart mom like me, you likely struggle to resist buying up everything with hearts. So I wanted to share with you some of my favorites and latest finds to honor and support your heart warrior. Heart Month is almost upon us and it’s time to call attention…
CHD. What is CHD? Are you ready?? It’s almost CHD Awareness Month! I’m covering loads of CHD basics below. Use this guide to help yourself, your family and your friends understand everything they might not yet know about CHD. Help us raise CHD awareness and join the fight for all those…
Shortly after my baby was diagnosed with a Congenital Heart Defect (CHD), I was thrust into a new world with all different terminology, like, heart warrior. If your child is diagnosed with CHD, you start to look at hearts differently and notice them everywhere. Everything heart takes on a whole…
Monitors alarming, machines beeping, and lights flashing are not the delightful Christmas sounds and sights I anticipate annually. They don’t ring quite like jingle bells or twinkle like lights on an evergreen tree. Christmas in the hospital is not something anyone puts on their wish list. Yet, we found ourselves…
We arrived at the front desk frantic… “our newborn baby was brought here by ambulance, where is she?!” The hospital lobby was eerily quiet since it was Saturday and the holiday season. Such a contrast to the cacophony symphony raging through my head. It took forever to get us checked…